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General DiscussionsSide effects of radiation

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Matt Quinn
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Side effects of radiation

Post by Matt Quinn » Wed Oct 31, 2018 8:07 pm

Had first of 20 radiation sessions today. The first shows the mask from the rear. It was molded to my head earlier in the week. I lie on the table with my head on the blue foam, looking up. They strap the helmet on my face and latch it down securely so I won't wiggle, take some photos for alignment, then shot from the left for 10 seconds, then from the right for 10 and it's done. I can keep the mask at the end, if I want. Something for the mantle?

The second photo shows what I will look like at the end.

We see oncologist tomorrow to review findings of lumbar puncture and set a plan of treatment. Feeling very positive and optimistic. Great support from family and friends here and on pM. Thanks. Matt
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minniev
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Post by minniev » Wed Oct 31, 2018 8:33 pm

Your sense of humor and creativity may well see you through Matt! Thanks for including us in this intensely personal journey through the dark spaces, and I'll be watching for those selfies!
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Post by davechinn » Wed Oct 31, 2018 9:21 pm

Matt, absolutely stunning !!! Laughter with a sense of humor will be a guiding light for you. Wishing you the best !!!
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Post by Psjunkie » Wed Oct 31, 2018 9:55 pm

Quite the improvement Matt.....maybe I should try.....good luck my friend!!

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Post by PietFrancke » Wed Oct 31, 2018 10:10 pm

Hey - that might straighten out my eyes. Don't take any metal into the microwave with you.

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Matt Quinn
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Post by Matt Quinn » Thu Nov 01, 2018 12:39 am

minniev wrote:
Wed Oct 31, 2018 8:33 pm
Your sense of humor and creativity may well see you through Matt! Thanks for including us in this intensely personal journey through the dark spaces, and I'll be watching for those selfies!
And thank you Minnie for the support. Matt
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Matt Quinn
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Post by Matt Quinn » Thu Nov 01, 2018 12:40 am

davechinn wrote:
Wed Oct 31, 2018 9:21 pm
Matt, absolutely stunning !!! Laughter with a sense of humor will be a guiding light for you. Wishing you the best !!!
Dave
Thanks Dave. Matt
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Matt Quinn
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Post by Matt Quinn » Thu Nov 01, 2018 12:42 am

PietFrancke wrote:
Wed Oct 31, 2018 10:10 pm
Hey - that might straighten out my eyes. Don't take any metal into the microwave with you.
They frisk me before the zap. They don't want any sizzle. Matt
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Matt Quinn
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Post by Matt Quinn » Sat Nov 03, 2018 1:07 am

Good news. The spinal fluid is clear; so the oncologist will treat the new spot in the stomach as an irritation and not chemo it; 20 sessions of radiation (3 down already); she believes the two tumors in the brain are lymphoma (less than a 1% chance they are something else);will not attempt to biopsy since trying to reach them would cause more damage than it's worth. And a lifetime (!) of regular follow-up visits. We can handle that.

I slept better last night than in months; I guess I was worried

Thanks for all the support and inspiration, Matt
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PietFrancke
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Post by PietFrancke » Sat Nov 03, 2018 1:56 am

Matt Quinn wrote:
Sat Nov 03, 2018 1:07 am
Good news. The spinal fluid is clear; so the oncologist will treat the new spot in the stomach as an irritation and not chemo it; 20 sessions of radiation (3 down already); she believes the two tumors in the brain are lymphoma (less than a 1% chance they are something else);will not attempt to biopsy since trying to reach them would cause more damage than it's worth. And a lifetime (!) of regular follow-up visits. We can handle that.

I slept better last night than in months; I guess I was worried

Thanks for all the support and inspiration, Matt
thank you for sharing this good news -

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